Saturday, January 10, 2009

The Science of Infusion Weekend

Pre-treat for the Tysabri headache with a norco one hour prior to infusion.

Plan on taking a norco every 4 hours for the headache over the course of the next 24-36 hours.

36 hours after the infusion, it's time for a PJ Pamper Party. Invite 4-6 of your closest friends.

Rent lots of movies.

Eat pizza & garlic knots from Flippin Pizza in La Costa.

Enjoy a couple of drinks of Crown Royal & Coke Zero.

And, finally, eat at least one bag of Pepperidge Farm Orange Milano cookies and a carton of chocolate ice cream.

-- Post From My iPhone


Blogger M. Rose said...

Hi! I'm about to start Tysabri. Does the I.V. always go in your chest or can you get it in your arm as well?

7:14 PM  
Blogger LunaFemme said...

No, the IV will most likely go in your arm. I have a port (in the chest) in because I have uncooperative veins and hold the record for infusion attempts (7 in 2 hours with 3 different nurses) at my infusion center.

although a headache is a fairly common side effect with the Tysabri, the severity of my headache is much more uncommon. For me the "fuzziness" and headache are the only side effects I experience. But, it takes me a good 4 days for my head to stop pounding. can go to to get more first hand experiences from other Tysabri users. It's a little different for everyone.

Good luck to you. I've had 7 infusions and am feeling the best I've felt since my diagnosis. The 4 days is way, way worth feeling better the rest of the month for me. Just re-engaging in life again is sweet!

11:24 PM  

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