Monday, June 22, 2009


Starting to get nervous about my next infusion. It's number 12.

-- Post From My iPhone

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Thursday, June 11, 2009

Today's Mantra

What I am experiencing is transitory, simply a moment in time. I do not accept this moment as permanent.

-- Post From My iPhone

It's Back

I think I jinxed myself. I had a meeting with a rep from Biogen Idec yesterday about patient advocacy and said, "This is the longest period of time I've gone exacerbation free." This morning, I woke up and the vertigo is back!

Okay, so this is probably my bodies way of saying slow down. But darn it, I've been having so much fun being reengaged in life again, I don't want to slow down!

I'm gonna pout for another half an hour and then it's off to the gym to meet my trainer. I think a very gentle work out is in my future!

-- Post From My iPhone


Wednesday, June 10, 2009

Me and Tysabri

I've been on Tysabri for almost a year now and, WOW, this drug has changed my life. I'm feeling the best that I've felt since my diagnosis and I've finally engaged in life again. It feels so, so good.

MRI results after 8 infusions shows all existing lesions have decreased in size and are less discernible on the MRI. And, my neurologist has downgraded my disability level back down to a 1, when I was at a 3.5 - 4 a year ago.

Sometimes it truly is amazing what a difference a day can make.

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Monday, January 26, 2009

A Part of my Heart

Sometimes my heart just aches with love when he's cuddled up with me!

-- Post From My iPhone

Saturday, January 17, 2009


Today I'm thankful for new friends & new experiences, which reaffirm how madly in love I am with my husband.

-- Post From My iPhone

Saturday, January 10, 2009

The Science of Infusion Weekend

Pre-treat for the Tysabri headache with a norco one hour prior to infusion.

Plan on taking a norco every 4 hours for the headache over the course of the next 24-36 hours.

36 hours after the infusion, it's time for a PJ Pamper Party. Invite 4-6 of your closest friends.

Rent lots of movies.

Eat pizza & garlic knots from Flippin Pizza in La Costa.

Enjoy a couple of drinks of Crown Royal & Coke Zero.

And, finally, eat at least one bag of Pepperidge Farm Orange Milano cookies and a carton of chocolate ice cream.

-- Post From My iPhone